Having a deaf day today and it’s driving me nuts. Had a meeting with my boss and I asked if I could send my team a web page with an explanation of Meniere’s disease (or syndrome as they are starting to call it) and she said no, I shouldn’t have to share my medical condition. Which leaves me with assholes thinking I’m faking when I hear sometimes and not others. Arggh!. Having an invisible condition is really annoying and frustrating. Having a disabilty that is episodic is worse. I feel sometimes I should wear a sign like lepers used to do and ring a bell so people know I have a disability that can’t be seen.
So many people have disabilities that don’t show, probably more than the ones that show and leaves you constantly having to explain why you can or cannot do something that TABs can do and not think about it. Our population is aging rapidly and there are going to be more and more people in my boat but until the TABs get with the program, if they ever do, I got to keep rowing my own.
The disabled employee group about a year ago did reach out and offer to help me work at home because most deaf employees do but after 9 weeks at home with the cat, I fear I’d go slowly insane even with all the conference calls. And they don’t always tell you when they make changes in procedures and if you aren’t there it’s easy to get an error. And going deaf is isolating enough without working at home.