Tag Archive | deafness

Getting older is a bitch

I’ve been a musician all my life. Some of my first memories are being taught songs in the car by my mom while we waited for my dad after work. For some reason I don’t remember where my brother was so he must have been pretty small or he would have been there too. Or sitting with my grandmother on an overnight at her house at the piano while she played short chants for doing things like weaving. I remember being so small that my feet didn’t reach the floor.

Mom and dad bought us lots of records and I’m giving my age away when I say the first ones were on 78 not 33 1/3 like LPs. We had a lot of folk songs and one with Danny Kaye singing and telling stories and one favourite I wish had survived, “Bozo and the Birds”. I was fixated on the Spoonbill.

My first instrument was the alto recorder, I think my parents didn’t want the ear piercing blasts produced with by the soprano, They didn’t buy me the soprano until I learned to play fairly well. I used to sit crossed legged on my bed and dad would ask me how the snake charming was coming or call me “swami”.

I started to learn the guitar when my best friend was being taught by her father and gave me her first guitar. She didn’t continue but I fell in love because it was smack in the middle of the folk song era and the Kingston Trio’s Lemon Tree was the first thing I learned to play and went on to the Child Ballads and then Peter, Paul and Mary and I was off.

Now that I’m going deaf playing the guitar is difficult because I can’t hear well enough to tune it and electronic tuners are too exact and don’t sound right. But the thing I miss most is singing with others and singing with other people takes very careful listening so that you match pitch and tone with everyone else. I spent a lot of time this last weekend Trying hard to listen when we were singing at the memorial and the FOI anniversary. Hoping I was in tune and fearing I wasn’t and too scared to ask how bad I was.

I miss playing my harp and guitar. I think I’m going to invest in a new recorder if just to have a way to fight back against my neighbor’s loud wall rattling video games and his monotonous electric guitar practice.

Anyway losing my hearing can be depressing

Adventures in impending deafness

I have problems with earbuds. They are too large for my ears and because of the impending deafness they help a lot when I need to do training at work or listen to music. I finally found some I can use. They come in large and small and the small are just right.

These: http://smile.amazon.com/Earbuds-MP3-Accessories-Shark-Hedgehog-Penguin-Scottie/dp/B00C27YMM6/ref=pd_sim_107_3?ie=UTF8&dpID=41R4Ejuk%2BnL&dpSrc=sims&preST=_AC_UL160_SR83%2C160_&refRID=1JZ24W2YDYBTE8H9EQ5K

They’re for kids but they are perfect. Besides the hedgehogs are cute. They also don’t seem to tangle as fiercely as most earbuds do and they aren’t noise cancelling which I like because noise cancelling headphones and earbuds make me intensely dizzy and can bring on an attack. I have no idea what they are doing to my inner ear but they are surely doing something or I wouldn’t be so damn dizzy.

Guess what I found: http://gizmodo.com/355678/noise-canceling-headphones-might-make-you-motion-sick. Good to know I’m not the only one that got seasick sitting in a chair.

Going deaf sucks.

Having a deaf day, meh!

I’m going deaf and I hate it. I have Meniere’s disease and everyone who has Meniere’s disease goes deaf. Allegedly you are better off at that point because you can get hearing devices. They don’t help before you go completely deaf. They’re just annoying because everything is loud. I can’t distinguish background from foreground noise, this confuses the hell out of people because if it’s completely quiet and nothing is interfering I can hear. So people get annoyed when sometimes I can hear them and sometimes I can’t.

There are a lot of people at work who don’t believe I have a hearing problem. That it’s an excuse to not have to be in the call center, it isn’t and lately the hearing is getting a lot worse for some reason.

The process has been at stasis for several years but lately, no, I’m having to accept I’m deafer. For a musician it can be torture. I can’t tune my guitar anymore and electronic tuners never feel right because while they may be more accurate to the pitch they are supposed to be they are not harmonized to the other strings correctly. I can still tell that.

Today it feels like I have a bathing cap on. I can hear but it’s muffled. Meniere’s disease causes the inner ear to fill up with fluid and every time it does more of the cilia in my ears die and I get deafer. Today my ears feel full like I’ve been in a pool too long. It makes your head feel heavy.

My sister and I now are walking to the Orange Line in the morning together now that she has a new job and she loves to walk ahead of me and still talk to me and I’m getting tired of yelling “What?” at her because she is facing away from me.

Deafness is isolating. You wonder what you are missing when you are in a crowd and can’t catch everything in the conversation. Sometimes I don’t go to things because it can be such hard work to try and keep up. It’s bad enough to be an introvert at a gathering let alone a slowly deafened one. I get exhausted. I loved getting out and going to Pagan Pride but I’m still tired from using all my energy trying to keep up. I made sure I was directly in front of Tagh at his workshop on Irish deities so I could follow his lips if I had to.

Deafness when people around you have known you as a hearing person is really hard because it’s invisible. Unless you are wearing an obvious hearing aid, no one knows you can’t hear unless you start signing at them and then if they don’t know sign language, it rewards you with a blank stare.

I will say I sleep better now most nights because I can’t hear our noisy neighbors on their balconies across the street. It’s the first summer I haven’t had to get up in the middle of the night and go across the street to tell someone to keep it down. There used to be a guy who would call home to the Old Country every Sunday morning at 3 or 4 am and I can’t tell if he’s still there because I can’t hear him. I still unfortunately can hear the asshat in number 4 who leaves at 5 to go surfing when he yells at his “bro” as they load the SUV under my bedroom window or his dumb blonde girlfriend who likes to make cell calls at 3 am that are totally inane. (She does it on the driveway where is echoes between the building and the wall on the driveway)

Today, like I said is a bad day, and to add to it I can hear the ringing in my ears which usually doesn’t bother me. Phooey rabbits!