I’m kind of frustrated and getting angry about all the people who keep bringing up all the other charities or issues that they want attention paid to and they get all bent out of shape that ALS is finally getting attention. I’ve heard the drought brought up and even it’s a white privilege issue but you know what? SO the FUCK what? Cancer always gets the attention. Stand up for cancer is coming up and there will be all kinds of whoopla about cancer or diseases like AIDS with the AIDS walk, both worthy but ALS has never gotten the attention… ever before and unlike Stephen Hawking most people don’t survive very long after diagnosis.
I’m watching someone I love with it now. Her partner and she struggle every day to get the care she needs and she needs 24 hour care. A year ago we thought it was arthritis or maybe MS. ALS is a terrible disease. It imprisons you in your body and if you don’t have the kind that is ALS/dementia, one of the three main varieties, you are fully aware but can’t do a thing. You can’t breathe on your own. You can’t move on your own. You can’t eat or even communicate what you want to eat once the ability to speak is robbed from you by the muscles in your throat stopping to function. And right now Medicare/Medicaid is cutting services for the care of people with ALS like stopping the funding of communication devices.
So you get trapped with no way to communicate at all. You can’t tell someone you are in pain or hungry or any of the things that we do every day and take for granted. So pardon me if I cheer every donation and every ice bucket challenge and I hope none of the people who are mouthing off about the Ice Bucket Challenge never have to deal with it.
Facts about ALS: http://www.alsa.org/about-als/facts-you-should-know.html
I’m walking for ALS and this is my page: http://webgw.alsa.org/site/TR/Walks/GoldenWest?px=4086622&pg=personal&fr_id=10142#.VAYyE_ldW8A
I read a reblog on someone’s blog I follow or at least I tried to but I got stopped cold by the writer’s use of a quote. If you are going to quote someone in a blog you are writing at least have the common sense to find out who actually said it? The phrase was “Know Thyself” and the writer attributed it to Jesus. Okay people! Not everything you find profound was said by Jesus. “Know Thyself” is one of the Delphic maxims. http://en.wikipedia.org/wiki/Delphic_maxims of which there are over 100. It’s been attributed to more than one Greek Philosopher all of whom were waaaaayyyy before your Jesus. And it wasn’t that hard to look up. It’s two words. Easy enough to type in the search engine of your choice.
I have no idea what the rest of the post was about because it wasn’t worth it after reading that kind of illiteracy in the first sentence. I’m sorry if that makes me elitist but stupid is as stupid does. It’s not unlike when I was getting harassed by co-workers for being pagan and watching them get infuriated by my correcting their biblical citations which were almost always incorrect or about something completely different than they were abusing it for and laughing at their frustration when they misused the quote about “even the devil can quote scripture”. The problem there is that the quote is from Shakespeare.
Merchant of Venice – Scene III
Mark you this, Bassanio,
The devil can cite Scripture for his purpose.
An evil soul producing holy witness
Is like a villain with a smiling cheek,
A goodly apple rotten at the heart:
O, what a goodly outside falsehood hath!
So if you are going to use a quote in your writing, look it up?
Memes I don’t care about because they are almost always wrong but your own writing?