Archive | August 22, 2014

I need to feel like I can do something even if it’s an illusion

One of the people I love best in the world has ALS. It’s one of the hardest things I’ve ever watched anyone and their partner do. I can only help by being there for them. I can’t go through it other than to be the best support I can be. It’s breaking my heart yet again. I’m angry that this disease is taking my vital red haired firebrand friend. I’m angry that the money can’t be sent to other than research at most charities and not to the people who need the care but at least by raising money it might help someone I love in the future. Please support me anyway you can even if it’s just to light a candle for my friends, Mary and her partner Denise, because they are loved beyond measure by the people that know them.

ALS is a nasty disease and just like cancer it breaks hearts and bodies down to the essential. It steals strength and vitality and muscle control. It steals the voice and the ability to enjoy things. It imprisons you in your body with no hope of a way out. And at the moment there is no way to stop it.

So okay, I can’t do the ice bucket challenge because that would just lock this arthritic up but I can do this:

On October 19, 2014, I’m joining hundreds of walkers for The ALS Association’s Walk to Defeat ALS®, and I need your support to make my efforts really matter!

ALS, also known as Lou Gehrig’s Disease, is a deadly illness with no known cause or cure.

It affects the motor neurons in a person’s brain and spinal cord. When the motor neurons die, the muscles waste away. Gradually, a person is robbed of the ability to walk, speak, eat, and eventually breathe. Upon diagnosis, doctors give ALS patients only two to five years to live.

And that’s why I’m walking – for those who can’t. By making a one-time, tax-deductible donation, you can truly make a difference in the fight against ALS. Just visit my online fundraising website listed below to make a donation.

Any amount you feel comfortable giving is deeply appreciated. Every dime makes a difference! With your support, we can make a positive impact today in the lives of those living with Lou Gehrig’s Disease.

Kat Robb

P.S. Please forward this email to as many people as possible and encourage them to donate too!